Ottawa’s rare disease plan “suicidal,” advocate warns

A leading rare disease advocate is criticizing Canada’s national strategy for rare disorders as “underwhelming,” “unequal,” and even “suicidal.”

Source: PICRYL

A leading rare disease advocate is criticizing Canada’s national strategy for rare disorders as “underwhelming,” “unequal,” and even “suicidal.” The advocate warns that the federal government is failing patients by not adopting global best practices or leading national coordination efforts.